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About CLIP

Children Living in Pain (CLIP) – is a non-for profit organization dedicated to creating awareness and helping all children living with any disease where pain is stopping them from living a normal life.  In our case our little girl has battled the hellish wrath of Pancreatitis for 7 years.  The only thing doctors can tell us for sure is that “it is rare for children” and “there is no cure”.  In fact we cannot find another child who has the disease and the horrible daily symptoms she suffers with. She never knows what to expect from day to day only that is will likely be bad.  What a way to go through life for anyone least of all a little girl.   She suffers so badly that she cannot attend school, make friends easily and she feels hopeless most of the time.  Doctors know so little that you can often feel the brush-off the second you enter the room.  I have seen the sorrow on my little girls face.  She knows she is deemed to be a waste of time and money in the medical world. Dr’s fix they do not research! They have no time for the rare and unusual cases like hers and perhaps yours!

What we know as parents who have children living in pain, for any reason, we are desperate for help.  We require the doctors, technology and the research of tomorrow if we want to save our loved ones today.  Without research it all stops.

There are many diseases that cause our children to live in pain.  Through (C.L.I.P.), this new information highway, we want to expose and share these monster diseases through our own experiences and stories.  In doing so we just may able to save or assist one child at a time!  We must fight back.

The Children Living in Pain – (C.L.I.P.) organization will place donations towards research so you can take solace in knowing your efforts and financial support are going in a direction that will definitely make a difference.   It is also our plan to assist children on a more personal level. There are many families in our own back yards that have a child with a disease and cannot afford the vary things they need to help them feel better.  This effort can only restore dignity and quality of life to children and families who are unable to attain medications, rehabilitation, information or anything required to help them move forward in life.

Over time we will to get to a place where we can offer this more personal assistance.  I have learned through my own internal pain that when you help another it helps your heart.

Through CLIP our aim will be to give the most important gift we can offer – help!

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(Currency: CAD)

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Recent Posts

  • Day-1 Hayley’s Total Pancreactomy & IV-Hell *Video’s*

    December 27, 2013
  • Day-2 Hayley Already Gets Out of Bed! (Video)

    December 26, 2013
  • Day-3 Hayley’s Up & Walking – First Steps*Video*

    December 26, 2013
  • Day-3 Hayley Talking – Graphic & Painful – What a Trooper *See Video*

    December 26, 2013
  • Day-4 – Cannot Find Vein in Feet & PICC Line Insertion (Video’s)

    December 25, 2013

    Room Make-Over @ Sickkids

    Room Make-Over @ Sickkids Hospital Toronto were Hayley spends a great deal of time. This Video is now part of the SickKids Video Library for distractions to assist other children in making their hospital stay a little brighter. She is always happy to help others.

    Hayley Devoe – CBC Radio Interview – Jun 18, 2013

    listen

    This is a radio interview done with CBC Radio Edmonton from the Alberta Stollery Children's Hospital May 31st, 2013. The interview was done one month after her 13 hour (TP/IAT) Total Pancreactomy & Auto Islet Transplant. By this time Hayley should have had a lot less pain than she was experiencing but we were remaining optimistic. Hayley had opportunity to do both radio and TV interviews to talk about being the 2nd child in Canada to undergo this type of rare surgery and also bring raise awareness to the wrath of Chronic Pancreatitis and the TP/IAT procedure. Hayley chose not to do any further interviews to support the surgery because she already knew in her heart that the surgery was NOT doing what it was supposed to. The surgery was done with almost no pre-testing. Looking back I am now wondering what did the doctor base his positive comment on? His words were that he was 99.9% sure that the surgery was going to help Hayley's pain considerably and maybe even stop it altogether! Never did he say it could make it worse...

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