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Articles posted by admin

(Day 9) – VIDEO -Pain is Bad- Total Pancreactomy- Blood Sugar- Groggy

Posted on December 10, 2013 by admin in Uncategorized No Comments

Day -09 – So hard to watch my little girl in this pain and suffering. Hayley finally slept a bit better Continually holding a pillow on her stomach for the sharp pain She has finally moves from ICU to a private room. It’s so quiet that we almost can’t sleep. There is a big space for mom […]

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Day-10 – Walking – Steps & Pain – (Video)

Posted on December 10, 2013 by admin in Hayley's Journey, Hayley’s TP/AIT - TP/AIT, Uncategorized No Comments

Day 10 – Video Hayley woke exhausted and in pain again. It was a tough night. Up & Down She walked despite the fatigue. When she was walking I noticed a great improvement in her step and her over-all mobility. She said her pain was about a 7. The acute pain team (Dr. Carney) team […]

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Day – 10 Hayley Talks Pain and future!!! – Video

Posted on December 10, 2013 by admin in Uncategorized No Comments

Day 10 – Hayley talks pain! Hayley on Blower -Video

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Day 11- Hayley Devoe – Building Her Lungs Post TP/IAT – (Video)

Posted on December 10, 2013 by admin in Uncategorized No Comments

Day 11- Hayley Devoe – Building Her Lungs Post TP/IAT Hayley woke up in pain today today. She had Gravol last night for nausea. We tried to walk however the pain is pretty intense. Dr. David (part of Dr. Shapiro’s team) came in and said the pain is still healing pain. They are carefully monitoring […]

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Recent Posts

  • Day-1 Hayley’s Total Pancreactomy & IV-Hell *Video’s*

    December 27, 2013
  • Day-2 Hayley Already Gets Out of Bed! (Video)

    December 26, 2013
  • Day-3 Hayley’s Up & Walking – First Steps*Video*

    December 26, 2013
  • Day-3 Hayley Talking – Graphic & Painful – What a Trooper *See Video*

    December 26, 2013
  • Day-4 – Cannot Find Vein in Feet & PICC Line Insertion (Video’s)

    December 25, 2013

    Room Make-Over @ Sickkids

    Room Make-Over @ Sickkids Hospital Toronto were Hayley spends a great deal of time. This Video is now part of the SickKids Video Library for distractions to assist other children in making their hospital stay a little brighter. She is always happy to help others.

    Hayley Devoe – CBC Radio Interview – Jun 18, 2013

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    This is a radio interview done with CBC Radio Edmonton from the Alberta Stollery Children's Hospital May 31st, 2013. The interview was done one month after her 13 hour (TP/IAT) Total Pancreactomy & Auto Islet Transplant. By this time Hayley should have had a lot less pain than she was experiencing but we were remaining optimistic. Hayley had opportunity to do both radio and TV interviews to talk about being the 2nd child in Canada to undergo this type of rare surgery and also bring raise awareness to the wrath of Chronic Pancreatitis and the TP/IAT procedure. Hayley chose not to do any further interviews to support the surgery because she already knew in her heart that the surgery was NOT doing what it was supposed to. The surgery was done with almost no pre-testing. Looking back I am now wondering what did the doctor base his positive comment on? His words were that he was 99.9% sure that the surgery was going to help Hayley's pain considerably and maybe even stop it altogether! Never did he say it could make it worse...

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