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Articles posted by Jenny

Day-1 Hayley’s Total Pancreactomy & Stollery in Edmonton – Videos & Pic’s

Posted on December 27, 2013 by Jenny in Hayley's Journey, TPAIT No Comments

Day-1 – Post-Op Hayley’s Total Pancreactomy & Auto Islet Transplant (TP/AIT) Surgery Here are some Videos from Hayley’s Pancreactomy & Auto Islet Transplant May 31, 2013.  Performed by Dr. James Shapiro at Stollery Children’s Hospital in Edmonton Alberta.  It was a 13 hour surgery (see photo gallery).  Hayley handled it like she does everything else in her life…with CLASS & […]

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Day-1 Hayley’s Total Pancreactomy & IV-Hell *Video’s*

Posted on December 27, 2013 by Jenny in Hayley's Journey, TPAIT No Comments

Surgery Day 🙁 Hayley’s Total Pancreactomy & Auto Islet Transplant (TP/AIT) Surgery This was the hardest decision we ever had to make.  Watching your child suffer in ANY manner is just not normal.  This is one of the biggest surgeries out there and Hayley handled it like she had done it 100 times before.  I could […]

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Day-3 Hayley Talking – Graphic & Painful – What a Trooper *See Video*

Posted on December 26, 2013 by Jenny in Hayley's Journey, TPAIT No Comments

Day-3 Hayley was up most of the night.   Hayley looks a little brighter today her nose and throat are really sore from the NG tube and from time to time she feels like she cannot breathe. Pain control is difficult.  We had to call the pain service again in the night and they increased the […]

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Pancreatitis – When is a PICC Line is Necessary & Why? (Video)

Posted on March 10, 2013 by Jenny in London Hospital Jan 2013, Treatments Tried No Comments

PICC Line Insertion- Video… Hayley after the second PICC Line London Hospital – Loopy!!  The PICC is a feed tube.  A PICC line is essentially a narrow flexible catheter inserted through a vein of the upper arm above the elbow until its tip reaches a very large heart vessel called the superior vena cava (SVC). Receiving a […]

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Recent Posts

  • Day-1 Hayley’s Total Pancreactomy & IV-Hell *Video’s*

    December 27, 2013
  • Day-2 Hayley Already Gets Out of Bed! (Video)

    December 26, 2013
  • Day-3 Hayley’s Up & Walking – First Steps*Video*

    December 26, 2013
  • Day-3 Hayley Talking – Graphic & Painful – What a Trooper *See Video*

    December 26, 2013
  • Day-4 – Cannot Find Vein in Feet & PICC Line Insertion (Video’s)

    December 25, 2013

    Room Make-Over @ Sickkids

    Room Make-Over @ Sickkids Hospital Toronto were Hayley spends a great deal of time. This Video is now part of the SickKids Video Library for distractions to assist other children in making their hospital stay a little brighter. She is always happy to help others.

    Hayley Devoe – CBC Radio Interview – Jun 18, 2013

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    This is a radio interview done with CBC Radio Edmonton from the Alberta Stollery Children's Hospital May 31st, 2013. The interview was done one month after her 13 hour (TP/IAT) Total Pancreactomy & Auto Islet Transplant. By this time Hayley should have had a lot less pain than she was experiencing but we were remaining optimistic. Hayley had opportunity to do both radio and TV interviews to talk about being the 2nd child in Canada to undergo this type of rare surgery and also bring raise awareness to the wrath of Chronic Pancreatitis and the TP/IAT procedure. Hayley chose not to do any further interviews to support the surgery because she already knew in her heart that the surgery was NOT doing what it was supposed to. The surgery was done with almost no pre-testing. Looking back I am now wondering what did the doctor base his positive comment on? His words were that he was 99.9% sure that the surgery was going to help Hayley's pain considerably and maybe even stop it altogether! Never did he say it could make it worse...

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