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Hayley’s TP/AIT – TP/AIT

Day-4 – Cannot Find Vein in Feet & PICC Line Insertion (Video’s)

Posted on December 25, 2013 by admin in Hayley's Journey, Hayley’s TP/AIT - TP/AIT, TPAIT No Comments

Day-4 Hayley has small veins that are near impossible to find.  They are now going to make arrangements to put in the first PICC Line.  This is hayleys 4th PICC line. Vein Search for IV…not very nice! Standing on her own after the PICC Line Insertion…soooo Proud!!!    

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Day-5 New PICC Line Replaces 6 IV’s

Posted on December 25, 2013 by admin in Hayley's Journey, Hayley’s TP/AIT - TP/AIT, Pancreatectomy with Auto-Islet Transplant No Comments

Day-5 Hayley is a little more coherent today.  I still doubt she’ll remember much. Leg compression bandages came off most of the day We had to ask to have the pain meds turned up again in the night. She still cannot get comfortable.  Everywhere she turns HURTS and there are wires, cables… Nurses are still […]

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Day 5 – IV Bleed Out– Hayley’s TP/AIT-(Video)

Posted on December 25, 2013 by admin in Hayley's Journey, Hayley’s TP/AIT - TP/AIT, TPAIT No Comments

Day 5 – IV Bleed Out– Hayley’s TP/AIT They are putting in a PICC line as you can the many IV lines are popping and falling out. A PICC Should have been put in days ago given she is running 6 separate pumps. Reaction To IV IV Bleed Out        

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Day-10 – Walking – Steps & Pain – (Video)

Posted on December 10, 2013 by admin in Hayley's Journey, Hayley’s TP/AIT - TP/AIT, Uncategorized No Comments

Day 10 – Video Hayley woke exhausted and in pain again. It was a tough night. Up & Down She walked despite the fatigue. When she was walking I noticed a great improvement in her step and her over-all mobility. She said her pain was about a 7. The acute pain team (Dr. Carney) team […]

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Recent Posts

  • Day-1 Hayley’s Total Pancreactomy & IV-Hell *Video’s*

    December 27, 2013
  • Day-2 Hayley Already Gets Out of Bed! (Video)

    December 26, 2013
  • Day-3 Hayley’s Up & Walking – First Steps*Video*

    December 26, 2013
  • Day-3 Hayley Talking – Graphic & Painful – What a Trooper *See Video*

    December 26, 2013
  • Day-4 – Cannot Find Vein in Feet & PICC Line Insertion (Video’s)

    December 25, 2013

    Room Make-Over @ Sickkids

    Room Make-Over @ Sickkids Hospital Toronto were Hayley spends a great deal of time. This Video is now part of the SickKids Video Library for distractions to assist other children in making their hospital stay a little brighter. She is always happy to help others.

    Hayley Devoe – CBC Radio Interview – Jun 18, 2013

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    This is a radio interview done with CBC Radio Edmonton from the Alberta Stollery Children's Hospital May 31st, 2013. The interview was done one month after her 13 hour (TP/IAT) Total Pancreactomy & Auto Islet Transplant. By this time Hayley should have had a lot less pain than she was experiencing but we were remaining optimistic. Hayley had opportunity to do both radio and TV interviews to talk about being the 2nd child in Canada to undergo this type of rare surgery and also bring raise awareness to the wrath of Chronic Pancreatitis and the TP/IAT procedure. Hayley chose not to do any further interviews to support the surgery because she already knew in her heart that the surgery was NOT doing what it was supposed to. The surgery was done with almost no pre-testing. Looking back I am now wondering what did the doctor base his positive comment on? His words were that he was 99.9% sure that the surgery was going to help Hayley's pain considerably and maybe even stop it altogether! Never did he say it could make it worse...

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