Hayley was up most of the night. Hayley looks a little brighter today her nose and throat are really sore from the NG tube and from time to time she feels like she cannot breathe.
Pain control is difficult. We had to call the pain service again in the night and they increased the Hydromorphone again. Hayley pushes the pump as often as she can.
We are moving her on the mat she is still unable to move at all on her own. We have been using pillows to support her back it is so hard to see her like this. God please let this work for her PLEASE!
The pain service checked her epidural apparently by shifting her from side to side the epidural will freeze according to which side you’re lying on.
Hayley’s incision is 13”long so moving her is no easy task. Too Many individual IV’s. 4-Per hand 2 in feet. PICC was needed!
She keeps tugging at her NG Stomach drain.
Ripped at her catheter.
Hayley’s loosing IV’s left and right. Peeds ICU team had to come in tonight because she popped an IV and is running out of places to put them.
The nurse was unable to get the IV finally Dr. Steel (anesthetics) came in and poked her another 4 times and then after her begging him to stop he went and got an ultrasound machine so he could see the vein. He mentioned that only a few people had access to the “portable ultra-sound machine” so others could not access it. After all that he missed the veins again even with the machine.
This was a bad night no matter how hard she tries she ‘just can’t get comfortable. The nurses are slightly impatient I almost went loco on one of them. Usually the nurses have been saints but there’s one in every crowd!
They are doing hourly blood/sugar testing. The pump is doing the regulation however it will soon switch over.