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Hayley’s TP/AIT – TP/AIT

Home» Hayley’s TP/AIT – TP/AIT

 

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Hayley’s Total Pancreactomy & Auto Islet Transplant May 31, 2013 @ Stollery Children’s Hospital Edmonton, Alberta. Dr. James Shapiro

Day-1 – Hayley’s Incision

Day-1 – Sitting Up Already

Day-1 – A little Smile for mom!

Day-1 

IV – Epic Fail (finding a vein) – She poked Hayley for over 7 minutes until I had to put a stop to it!  The poor kid just underwent 13 hours of surgery…Enough is Enough!  Get someone who can get the job done right!!!

Day-2  Hayley gets up out of bed!

Day-2 Proud as can be!!

Day – 3 Hayley is awake and aware!

Day-3 Even using a “High Tech” Ultrasound machine the doctor is unable to find and snag a vein for yet another IV line.  Hayley’s veins don’t come out to play…ever!

Day-3 So many IV’s per hand…how much can a young girl endure 🙁

Day-3 Already Walking

Day-4 Too many IV’s per hand…off to the feet they go!

Day-4 NG Stomach Drain!

Hayley keeps pulling out her NG drain.  If she pulls it out all the way she will have to have it put back in her nose and throat.  NOT NICE!  They have really taped it down to her face.

Videos, Pictures, Information and Your stories are being added as often as I can. Please send any information you would like to share to childrenlivinginpain@gmail.com

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Recent Posts

  • Day-1 Hayley’s Total Pancreactomy & IV-Hell *Video’s*

    December 27, 2013
  • Day-2 Hayley Already Gets Out of Bed! (Video)

    December 26, 2013
  • Day-3 Hayley’s Up & Walking – First Steps*Video*

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  • Day-4 – Cannot Find Vein in Feet & PICC Line Insertion (Video’s)

    December 25, 2013

    Room Make-Over @ Sickkids

    Room Make-Over @ Sickkids Hospital Toronto were Hayley spends a great deal of time. This Video is now part of the SickKids Video Library for distractions to assist other children in making their hospital stay a little brighter. She is always happy to help others.

    Hayley Devoe – CBC Radio Interview – Jun 18, 2013

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    This is a radio interview done with CBC Radio Edmonton from the Alberta Stollery Children's Hospital May 31st, 2013. The interview was done one month after her 13 hour (TP/IAT) Total Pancreactomy & Auto Islet Transplant. By this time Hayley should have had a lot less pain than she was experiencing but we were remaining optimistic. Hayley had opportunity to do both radio and TV interviews to talk about being the 2nd child in Canada to undergo this type of rare surgery and also bring raise awareness to the wrath of Chronic Pancreatitis and the TP/IAT procedure. Hayley chose not to do any further interviews to support the surgery because she already knew in her heart that the surgery was NOT doing what it was supposed to. The surgery was done with almost no pre-testing. Looking back I am now wondering what did the doctor base his positive comment on? His words were that he was 99.9% sure that the surgery was going to help Hayley's pain considerably and maybe even stop it altogether! Never did he say it could make it worse...

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