Childrens Stories

What is Acute & Chronic Pancreatitis – Overview

Posted on March 27, 2015 by admin in Adults Stories, Childrens Stories, Hayley's Journey, TPAIT No Comments

What is Acute & Chronic Pancreatitis – Overview Acute and Chronic Pancreatitis usually begin with pain in the upper abdomen and can last anywhere from a few minutes of intense pain to several days of pain that is anywhere from mild to severe. The pain from Pancreatitis can radiate into the back or other areas […]

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Chronic Pancreatitis & Severe Pain…Will It Ever Stop?

Posted on December 24, 2013 by admin in Childrens Stories, Stories No Comments

My name is Jenny Devoe and I am Hayley’s mom. This is an open letter with the only goal being that someone will read it and offer some type of help for my little girl before its too late. At this point in time I am writing out of sheer desperation with the hope that Hayley’s case will spark a […]

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This is a radio interview done with CBC Radio Edmonton from the Alberta Stollery Children's Hospital May 31st, 2013. The interview was done one month after her 13 hour (TP/IAT) Total Pancreactomy & Auto Islet Transplant. By this time Hayley should have had a lot less pain than she was experiencing but we were remaining optimistic. Hayley had opportunity to do both radio and TV interviews to talk about being the 2nd child in Canada to undergo this type of rare surgery and also bring raise awareness to the wrath of Chronic Pancreatitis and the TP/IAT procedure. Hayley chose not to do any further interviews to support the surgery because she already knew in her heart that the surgery was NOT doing what it was supposed to. The surgery was done with almost no pre-testing. Looking back I am now wondering what did the doctor base his positive comment on? His words were that he was 99.9% sure that the surgery was going to help Hayley's pain considerably and maybe even stop it altogether! Never did he say it could make it worse...

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