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Day-4 – Hayley gets PICC Line (Video)

Posted on December 25, 2013 by admin in Hayley's Journey, TPAIT, Uncategorized No Comments

Hayley Finally Gets a PICC Line

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Day 4 – Doggy Therapy Brynn – Hayley’s TP/AIT-(Video)

Posted on December 25, 2013 by admin in Hayley's Journey, TPAIT, Uncategorized No Comments

Dog Therapy at Stollery Hospital Day-4

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Day-7 Stomach Drain – NG Tube (Video)

Posted on December 16, 2013 by admin in Uncategorized No Comments

Stomach Drain-NG Tube Test Here’s the deal- If they are able to continuously pump 4 of those tubes of fluid from her stomach then the NG tube must stay in. 🙁 Sleeping is bad she but is really drugged and likely won’t remember a lot (I Hope). Hayley is a little more coherent today which […]

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(Day 9) – VIDEO -Pain is Bad- Total Pancreactomy- Blood Sugar- Groggy

Posted on December 10, 2013 by admin in Uncategorized No Comments

Day -09 – So hard to watch my little girl in this pain and suffering. Hayley finally slept a bit better Continually holding a pillow on her stomach for the sharp pain She has finally moves from ICU to a private room. It’s so quiet that we almost can’t sleep. There is a big space for mom […]

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This is a radio interview done with CBC Radio Edmonton from the Alberta Stollery Children's Hospital May 31st, 2013. The interview was done one month after her 13 hour (TP/IAT) Total Pancreactomy & Auto Islet Transplant. By this time Hayley should have had a lot less pain than she was experiencing but we were remaining optimistic. Hayley had opportunity to do both radio and TV interviews to talk about being the 2nd child in Canada to undergo this type of rare surgery and also bring raise awareness to the wrath of Chronic Pancreatitis and the TP/IAT procedure. Hayley chose not to do any further interviews to support the surgery because she already knew in her heart that the surgery was NOT doing what it was supposed to. The surgery was done with almost no pre-testing. Looking back I am now wondering what did the doctor base his positive comment on? His words were that he was 99.9% sure that the surgery was going to help Hayley's pain considerably and maybe even stop it altogether! Never did he say it could make it worse...

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