Hayley is in a great deal of pain each day we are doing the best we can. It is very hard for her to have any type of normal or fun life. No doctor has an answer it’s quite sad and pathetic that the “doctors” so far are in such a comfort zone with their worlds that they are not able to help her. Does anyone consider thinking outside the box? It’s been nothing but passing the buck over and over. For them it’s the easy way out. They go home at night to their happy children . For the most part even the chronically ill children get relief from pain….Hayley does NOT!