Video – Hayley’s Hobbies

Posted on September 17, 2012 by Jenny in Distractions from Pain No Comments

Home» Distractions from Pain » Video – Hayley’s Hobbies

Hayley spent years in dance and loves it to this day. Things have changed drastically since this was shot! Sadly her pancreas puts huge limitations on what she is able to do no. If she pushes herself her pancreatic pain will escalate quickly. Sadly her pancreatitis affects her favourite hobbies in the world…dance, sports and she still loves to act! Dance frees her….but the pain affects keeps her a prisioner!

It is heart breaking to know your child is so limited in everything she loves to do.

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This is a radio interview done with CBC Radio Edmonton from the Alberta Stollery Children's Hospital May 31st, 2013. The interview was done one month after her 13 hour (TP/IAT) Total Pancreactomy & Auto Islet Transplant. By this time Hayley should have had a lot less pain than she was experiencing but we were remaining optimistic. Hayley had opportunity to do both radio and TV interviews to talk about being the 2nd child in Canada to undergo this type of rare surgery and also bring raise awareness to the wrath of Chronic Pancreatitis and the TP/IAT procedure. Hayley chose not to do any further interviews to support the surgery because she already knew in her heart that the surgery was NOT doing what it was supposed to. The surgery was done with almost no pre-testing. Looking back I am now wondering what did the doctor base his positive comment on? His words were that he was 99.9% sure that the surgery was going to help Hayley's pain considerably and maybe even stop it altogether! Never did he say it could make it worse...

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