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Articles posted by Jenny

Pancreatitis – Removing the PICC Line – Hayley Devoe (See Video)

Posted on March 10, 2013 by Jenny in Hayley's Journey, London Hospital Jan 2013, PICC Line No Comments

Pancreatitis – Removing the PICC Line When the peripherally inserted central catheter is no longer required it is removed similar to a peripheral catheter. It is also discontinued when the patient develops catheter complications such as infection, damage, or blocked. It is a painless procedure that takes only a few minutes and can easily be […]

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Quality of Life Improves for Pediatric Patients After Total Pancreatectomy and Islet Autotransplant for Chronic Pancreatitis

Posted on February 22, 2013 by Jenny in Facts, Pancreatectomy with Auto-Islet Transplant, Research No Comments

BACKGROUND & AIMS                (See Link…)         Total pancreatectomy and islet autotransplant (TP/IAT) have been used to treat patients with painful chronic pancreatitis. Initial studies indicated that most patients experienced significant pain relief, but there were few validated measures of quality of life. We investigated whether health-related quality of life improved among pediatric patients undergoing TP/IAT. METHODS […]

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Video: Welcome to Chronic Pancreatitis-Hayley IV Start London Childrens Hospital Jan-2013

Posted on January 14, 2013 by Jenny in Hayley's Journey, London Hospital Jan 2013 No Comments

 VIEW VIDEO…   Most kids would crumble at the thought of an IV start.  All hayley knows is that it is the start of better pain control and a TPN to come.  At this point she is happy to get it!  My brave little trooper!  It’s pretty bad when you look forward to an IV.     […]

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Pancreas Transplant Program – “Edmonton Protocol”

Posted on December 3, 2012 by Jenny in Facts, Pancreatectomy with Auto-Islet Transplant, Research No Comments

James Shapiro, M.D., Ph.D., FRCSC                       (See Link….) Born in Leeds, England, Dr James Shapiro obtained his Medical Degree at the University of Newcastle-upon-Tyne and trained in Surgery at the University of Bristol. In 1993, He came to the University of Alberta in Canada to train in liver transplantation and hepatobiliary surgery, continuing research studies in […]

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Recent Posts

  • Day-1 Hayley’s Total Pancreactomy & IV-Hell *Video’s*

    December 27, 2013
  • Day-2 Hayley Already Gets Out of Bed! (Video)

    December 26, 2013
  • Day-3 Hayley’s Up & Walking – First Steps*Video*

    December 26, 2013
  • Day-3 Hayley Talking – Graphic & Painful – What a Trooper *See Video*

    December 26, 2013
  • Day-4 – Cannot Find Vein in Feet & PICC Line Insertion (Video’s)

    December 25, 2013

    Room Make-Over @ Sickkids

    Room Make-Over @ Sickkids Hospital Toronto were Hayley spends a great deal of time. This Video is now part of the SickKids Video Library for distractions to assist other children in making their hospital stay a little brighter. She is always happy to help others.

    Hayley Devoe – CBC Radio Interview – Jun 18, 2013

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    This is a radio interview done with CBC Radio Edmonton from the Alberta Stollery Children's Hospital May 31st, 2013. The interview was done one month after her 13 hour (TP/IAT) Total Pancreactomy & Auto Islet Transplant. By this time Hayley should have had a lot less pain than she was experiencing but we were remaining optimistic. Hayley had opportunity to do both radio and TV interviews to talk about being the 2nd child in Canada to undergo this type of rare surgery and also bring raise awareness to the wrath of Chronic Pancreatitis and the TP/IAT procedure. Hayley chose not to do any further interviews to support the surgery because she already knew in her heart that the surgery was NOT doing what it was supposed to. The surgery was done with almost no pre-testing. Looking back I am now wondering what did the doctor base his positive comment on? His words were that he was 99.9% sure that the surgery was going to help Hayley's pain considerably and maybe even stop it altogether! Never did he say it could make it worse...

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