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Articles posted by Jenny

Video!! -Hayley-Music Therapy & Distraction from pain @ Sickkids

Posted on September 30, 2012 by Jenny in Therapy No Comments

Music Therapy a great distraction!

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Shirley’s Story – Chronic Pancreatitis

Posted on September 29, 2012 by Jenny in Adults Stories, Stories No Comments

Shirley’s Story      I lived with pain in my pancreas since 1985 but with no attacks. In November 1993, I had surgery for ovarian cancer. I had to go on chemotherapy for six months and then I had a second exploratory surgery. After the second surgery, I was very sick and vomiting. From the second surgery […]

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Pancreatitis & Hayley’s Journey

Posted on September 20, 2012 by Jenny in Hayley's Journey, Stories No Comments

Over six years ago, when she was only 7 years old, Hayley had a sudden attack of severe upper abdominal pain accompanied by vomiting bile and swelling in the abdomen. I took her to the ER at Cambridge Memorial Hospital (CMH) in Cambridge, Ontario. The ER doctor did an X-ray, ultrasound, and various blood tests. […]

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Video – Hayley’s Hobbies

Posted on September 17, 2012 by Jenny in Distractions from Pain No Comments

Hayley spent years in dance and loves it to this day. Things have changed drastically since this was shot!  Sadly her pancreas puts huge limitations on what she is able to do no. If she pushes herself her pancreatic pain will escalate quickly. Sadly her pancreatitis affects her favourite hobbies in the world…dance, sports and she still […]

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Recent Posts

  • Day-1 Hayley’s Total Pancreactomy & IV-Hell *Video’s*

    December 27, 2013

  • Day-2 Hayley Already Gets Out of Bed! (Video)

    December 26, 2013

  • Day-3 Hayley’s Up & Walking – First Steps*Video*

    December 26, 2013

  • Day-3 Hayley Talking – Graphic & Painful – What a Trooper *See Video*

    December 26, 2013

  • Day-4 – Cannot Find Vein in Feet & PICC Line Insertion (Video’s)

    December 25, 2013

    Room Make-Over @ Sickkids

    Room Make-Over @ Sickkids Hospital Toronto were Hayley spends a great deal of time. This Video is now part of the SickKids Video Library for distractions to assist other children in making their hospital stay a little brighter. She is always happy to help others.

    Hayley Devoe – CBC Radio Interview – Jun 18, 2013

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    This is a radio interview done with CBC Radio Edmonton from the Alberta Stollery Children's Hospital May 31st, 2013. The interview was done one month after her 13 hour (TP/IAT) Total Pancreactomy & Auto Islet Transplant. By this time Hayley should have had a lot less pain than she was experiencing but we were remaining optimistic. Hayley had opportunity to do both radio and TV interviews to talk about being the 2nd child in Canada to undergo this type of rare surgery and also bring raise awareness to the wrath of Chronic Pancreatitis and the TP/IAT procedure. Hayley chose not to do any further interviews to support the surgery because she already knew in her heart that the surgery was NOT doing what it was supposed to. The surgery was done with almost no pre-testing. Looking back I am now wondering what did the doctor base his positive comment on? His words were that he was 99.9% sure that the surgery was going to help Hayley's pain considerably and maybe even stop it altogether! Never did he say it could make it worse...

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