Road Blocks

Every Child Should Have The Right to an “Equal” Education – What’s Available to Chronically Sick Children?

Posted on November 21, 2012 by Jenny in Education, Road Blocks No Comments

Every Child Should Have the Right to an “Equal” Education – What’s Available to a Disabled Child…. Is it enough? Home Instruction – Who knew? Once you finally are lucky enough to stumble on it you quickly realize 3 hours a week of “Home Instruction” is nowhere near enough learning time for any child who […]

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This is a radio interview done with CBC Radio Edmonton from the Alberta Stollery Children's Hospital May 31st, 2013. The interview was done one month after her 13 hour (TP/IAT) Total Pancreactomy & Auto Islet Transplant. By this time Hayley should have had a lot less pain than she was experiencing but we were remaining optimistic. Hayley had opportunity to do both radio and TV interviews to talk about being the 2nd child in Canada to undergo this type of rare surgery and also bring raise awareness to the wrath of Chronic Pancreatitis and the TP/IAT procedure. Hayley chose not to do any further interviews to support the surgery because she already knew in her heart that the surgery was NOT doing what it was supposed to. The surgery was done with almost no pre-testing. Looking back I am now wondering what did the doctor base his positive comment on? His words were that he was 99.9% sure that the surgery was going to help Hayley's pain considerably and maybe even stop it altogether! Never did he say it could make it worse...

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