Hayley’s Journey

Chronic Pancreatitis Therapies – Possible Help With your Pain – ( see Link & Video)

Posted on November 27, 2012 by Jenny in Hayley's Journey, Treatments Tried No Comments

View Link…. Celiac Nerve Block Patients with advanced stages of chronic pancreatitis may fail to have adequate control of pain with oral drug therapy. In these patients, more aggressive intervention is required. In cases of intractable pain, injection of a local anesthetic around the nerve temporarily inhibits nerve fibers from transmitting pain messages. Celiac plexus […]

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Pancreatitis & Hayley’s Journey

Posted on September 20, 2012 by Jenny in Hayley's Journey, Stories No Comments

Over six years ago, when she was only 7 years old, Hayley had a sudden attack of severe upper abdominal pain accompanied by vomiting bile and swelling in the abdomen. I took her to the ER at Cambridge Memorial Hospital (CMH) in Cambridge, Ontario. The ER doctor did an X-ray, ultrasound, and various blood tests. […]

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Easter 2012 at Sickkids Hospital

Posted on August 1, 2012 by Jenny in Hayley's Journey, Stories No Comments

Easter 2012 at Sickkids Hospital We spent her 2012 Easter at Sickkids Hospital on a feeding tube. No turkey dinner or anything for Hayley or mom that day! Hayley had nothing to eat for Hayley for 2 weeks not even ice! Just as it started to work and her pain started to level out they […]

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Celiac Plexus Block – #1 Video & Story Can Hayley’s Pancreatitis Pain be Managed using a (CPB)

Posted on July 17, 2012 by Jenny in Hayley's Journey, Treatments Tried No Comments

See Video of CPB…. After suffering for 6 years from the effects of her pancreatitis attacts and the severe pain now closing in on her dayily along with many other horrible symptoms like being out of school and having no quality of life I approached the “Sickkids Pain team” and asked about a Celiac Plexus […]

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This is a radio interview done with CBC Radio Edmonton from the Alberta Stollery Children's Hospital May 31st, 2013. The interview was done one month after her 13 hour (TP/IAT) Total Pancreactomy & Auto Islet Transplant. By this time Hayley should have had a lot less pain than she was experiencing but we were remaining optimistic. Hayley had opportunity to do both radio and TV interviews to talk about being the 2nd child in Canada to undergo this type of rare surgery and also bring raise awareness to the wrath of Chronic Pancreatitis and the TP/IAT procedure. Hayley chose not to do any further interviews to support the surgery because she already knew in her heart that the surgery was NOT doing what it was supposed to. The surgery was done with almost no pre-testing. Looking back I am now wondering what did the doctor base his positive comment on? His words were that he was 99.9% sure that the surgery was going to help Hayley's pain considerably and maybe even stop it altogether! Never did he say it could make it worse...

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