Stories

Chronic Pancreatitis & Severe Pain…Will It Ever Stop?

Posted on December 24, 2013 by admin in Childrens Stories, Stories No Comments

My name is Jenny Devoe and I am Hayley’s mom. This is an open letter with the only goal being that someone will read it and offer some type of help for my little girl before its too late. At this point in time I am writing out of sheer desperation with the hope that Hayley’s case will spark a […]

View Post

Day-10 – Walking – Steps & Pain – (Video)

Posted on December 10, 2013 by admin in Hayley's Journey, Hayley’s TP/AIT - TP/AIT, Uncategorized No Comments

Day 10 – Video Hayley woke exhausted and in pain again. It was a tough night. Up & Down She walked despite the fatigue. When she was walking I noticed a great improvement in her step and her over-all mobility. She said her pain was about a 7. The acute pain team (Dr. Carney) team […]

View Post

Day-11 Stomach Drain Finally Comes Out

Posted on December 10, 2013 by admin in Hayley's Journey, Hayley’s TP/AIT - TP/AIT, Pancreatectomy with Auto-Islet Transplant No Comments

Day – 11 – Stomach Drain Finally Comes Out Hayley woke up in brighter spirits today. She felt much peppier between 6:30am and 8:30am. We did our usual walk but she was in noticeable pain. The nurse came in at 7am and asked if she’d like the NG tube out. She said YET AGAIN if […]

View Post

Day-11- NG Tube Finally Removed – So Brave See Video

Posted on December 1, 2013 by admin in Hayley's Journey, Hayley’s TP/AIT - TP/AIT, Pancreatectomy with Auto-Islet Transplant, TPAIT No Comments

Day-11- NG Tube Finally Removed – So Brave See Video Hayley woke up in brighter spirits today She felt much peppier between 6:30am and 8:30am. We did our usual walk but she was in noticeable pain. The nurse came in at 7am and asked if she’d like the NG tube out. She said YET […]

View Post

listen

This is a radio interview done with CBC Radio Edmonton from the Alberta Stollery Children's Hospital May 31st, 2013. The interview was done one month after her 13 hour (TP/IAT) Total Pancreactomy & Auto Islet Transplant. By this time Hayley should have had a lot less pain than she was experiencing but we were remaining optimistic. Hayley had opportunity to do both radio and TV interviews to talk about being the 2nd child in Canada to undergo this type of rare surgery and also bring raise awareness to the wrath of Chronic Pancreatitis and the TP/IAT procedure. Hayley chose not to do any further interviews to support the surgery because she already knew in her heart that the surgery was NOT doing what it was supposed to. The surgery was done with almost no pre-testing. Looking back I am now wondering what did the doctor base his positive comment on? His words were that he was 99.9% sure that the surgery was going to help Hayley's pain considerably and maybe even stop it altogether! Never did he say it could make it worse...

‹ › ×