Day-1 – Post-Op – TP/AIT
Hayley’s Total Pancreactomy & Auto Islet Transplant (TP/AIT)
13 Hours in Surgery
47 Days in Stollery Children’s Hospital in Edmonton Alberta
Hayley Sitting Up Already
Gentle Nod! For Mom
Hayley was up most of the night in shock and pain. She is a little more coherent today but not much. I slept 2 hours and was up with Hayley the rest of the night. It is probably better she doesn’t remember anything. She is completely helpless and needs to be assisted in rolling from side to side. Through it all they say she will be up out of bed within a few days. Hayley stated she would like to try sitting up right away…as in today. She is a fighter that’s for sure. Her Total Pancreactomy & Auto Islet Transplant (TP/AIT) surgery left behind a scar approximately 13”inches long.
Hayley is head to toe with pumps, IV’s (see Video, Pictures and list below) Nurses are in with Hayley doing something every 5-15 minutes. Hayley is steadily running 6 pumps all with a different function to ensure she stays alive along with an epidural in her spine and a catheter for the bladder. She also has a very uncomfortable NG Tube.
(Nasogastric Aspiration) – Nasogastric aspiration (suction) is the process of draining the stomach’s contents via the tube. Nasogastric aspiration is mainly used to remove gastric secretions
All she has to do is lay there.
She cannot get comfortable. Everywhere she turns there are wires, cables… Nurses are moving her with the drop pads to avoid hurting her.
- She had 6 IV pumps running. They were all doing something different.
- Hayley has 3 IV lines running into one arm
- Oxygen vent
- “NG” Tube coming out of her left nostril draining her stomach fluids,
- Catheter draining her bladder
- Pain infusion through separate IV (steady background)
- An additional pain pump that allows her to push a button to “top her off” regarding the pain.
- She also has the epidural running into her spine which seemed to be helping freeze her surgical area
- Compression Stockings
- Her incision is open and is a 13” long cut.
The compression stockings are on both legs for circulation. This is to prevent blood clots from the current immobility.
I have never seen so many cables coming off of one person (my child). She is in and out. She has a pain of about 10 but the epidural is holding a lot of it down. She requires assistance to move any part of her body. Dr. David has ordered an x-ray. They want to see if any fluid is building up in the GI area.