childrenlivinginpain.com
  • Email
  • Facebook
  • Twitter
  • Youtube
  • Home
  • About CLIP
    • Why CLIP Started
    • Children Living In Pain – Our Mission Statement
  • Stories
    • Adults Stories
    • Childrens Stories
    • Road Blocks
    • Hayley’s Journey
  • Resources
    • Government Programs
    • Education
    • Facts
  • Hayley’s TP/AIT – TP/AIT
  • Pain Ruins Life
  • Donations
  • Contact

Every Child Should Have The Right to an “Equal” Education – What’s Available to Chronically Sick Children?

Posted on November 21, 2012 by Jenny in Education, Road Blocks No Comments
Home» Resources » Education » Every Child Should Have The Right to an “Equal” Education – What’s Available to Chronically Sick Children?

Every Child Should Have the Right to an “Equal” Education – What’s Available to a Disabled Child…. Is it enough?

Home Instruction – Who knew? Once you finally are lucky enough to stumble on it you quickly realize 3 hours a week of “Home Instruction” is nowhere near enough learning time for any child who is home with a disease especially a painful one whereby “stress” can make the pain even worse.

When your child becomes chronically ill and in severe pain or other hindrances prevent them from attending school can you afford to quit your job to stay home and become the teacher as well?

Click Link…. Inclusion (Disability Rights)

Here is one of the somewhat useless choices the public school board offered Hayley…

Home Instruction (Allied Services)

Provincial school law provides that a child may be excused from attendance at school if unable to attend because of illness. Home instruction

THE LAW STATES….

(3 hours per week) of HOME INSTRUCTION may be provided for any student unable to attend school because of illness. The student may NOT attend the school for classes or any reason without special permission!

Typically a full-time student will have several classes a term this being within the (Waterloo Regional District School Board) – Mathematics, English, (Core Subjects) History, Geography, Science -let’s forget any fun stuff like gym or music. How many hours per week does a child actually need in school? Cut the fat!

3 Hours…Are You Kidding Me? ….. How does 3 hours a week offer any sick child a fair shot at an education?

Try finding the legislation for this “hand-out”

In Hayley’s case it’s just enough to make her feel worse about herself. Not enough time for one subject let alone anything further. Now the child is home, ill, barely educated, withdrawing from peers and completely alienated from their friends. For us this became our only choice Grade 7 & 8 – the most critical years when become prepped both mentally and socially for high school. It is virtually another dangling carrot that a desperate parent is forced to take if they are unable to homeschool or find their own “self-funded” ways to fill this huge gap!

In Hayley’s case even if I hired a full time teacher (which I did) her pain is so great and unpredictable that full-time studies are not possible. You now have to have “tailor” or “taper” studies and create flexibility in the times you teach. Who wants to do that for you?

The school told me not to worry that Hayley would pass but they never took into consideration that I may want her to know something along the way.

 

See my email request to the     Waterloo Regional District School Board challenging the fact that 3 hours     of “HOME INSTRUCTION” weekly are simply not enough for any sick     child in grade 7 or 8 to pass fairly or prepare for high school.

Then see the Reply…

 

 

 

 

 

Leave a Reply Cancel reply

You must be logged in to post a comment.

Donate


(Currency: CAD)

Categories

Recent Posts

  • Day-1 Hayley’s Total Pancreactomy & IV-Hell *Video’s*

    December 27, 2013
  • Day-2 Hayley Already Gets Out of Bed! (Video)

    December 26, 2013
  • Day-3 Hayley’s Up & Walking – First Steps*Video*

    December 26, 2013
  • Day-3 Hayley Talking – Graphic & Painful – What a Trooper *See Video*

    December 26, 2013
  • Day-4 – Cannot Find Vein in Feet & PICC Line Insertion (Video’s)

    December 25, 2013

    Room Make-Over @ Sickkids

    Room Make-Over @ Sickkids Hospital Toronto were Hayley spends a great deal of time. This Video is now part of the SickKids Video Library for distractions to assist other children in making their hospital stay a little brighter. She is always happy to help others.

    Hayley Devoe – CBC Radio Interview – Jun 18, 2013

    listen

    This is a radio interview done with CBC Radio Edmonton from the Alberta Stollery Children's Hospital May 31st, 2013. The interview was done one month after her 13 hour (TP/IAT) Total Pancreactomy & Auto Islet Transplant. By this time Hayley should have had a lot less pain than she was experiencing but we were remaining optimistic. Hayley had opportunity to do both radio and TV interviews to talk about being the 2nd child in Canada to undergo this type of rare surgery and also bring raise awareness to the wrath of Chronic Pancreatitis and the TP/IAT procedure. Hayley chose not to do any further interviews to support the surgery because she already knew in her heart that the surgery was NOT doing what it was supposed to. The surgery was done with almost no pre-testing. Looking back I am now wondering what did the doctor base his positive comment on? His words were that he was 99.9% sure that the surgery was going to help Hayley's pain considerably and maybe even stop it altogether! Never did he say it could make it worse...

    Latest Tweets

    • Could not fetch Twitter RSS feed.

    © 2012 childrenlivinginpain.com - Website and Hosting by iGreenhosting.net

    ‹ › ×