This is Hayley my lovely little girl, my life and the apple of her sisters Lyndsay and Shayna's eye! HAYLEY is our hero!!! Hayley became deathly ill at the age of 6. After much confusion and disbelief by doctors, 100's of IV's, feed tubes, scopes, test, over 50 admissions to hospitals and so much more...Hayley was diagnosed with a RARE disease named Chronic Pancreatitis.
This is a SECOND cue card video out there on youtube. This is MY true life story hope you like it.
I am desperately hoping to get this message to the right person. My little girl Hayley from Cambridge, Ontario is dying and it would mean so much if you could just read this. I tried to keep it brief and to the point but I have so much to share that I don’t know where to stop and start.
This is Hayley my lovely little girl, my life and the apple of her sisters Lyndsay and Shayna's eye! HAYLEY is our hero!!! Hayley became deathly ill at the age of 6. After much confusion and disbelief by doctors, 100's of IV's, feed tubes, scopes, test, over 50 admissions to hospitals and so much more...Hayley was diagnosed with a RARE disease named Chronic Pancreatitis.
This is a SECOND cue card video out there on youtube. This is MY true life story hope you like it.
I am desperately hoping to get this message to the right person. My little girl Hayley from Cambridge, Ontario is dying and it would mean so much if you could just read this. I tried to keep it brief and to the point but I have so much to share that I don’t know where to stop and start.
Some people will continue to experience pain long after recovering from an initial injury, such as a back injury. Other chronic pain is caused by chronic diseases such as arthritis or cancer.
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Pain can affect anyone at any age — even children and teenagers can feel chronic pain caused by neurological or musculoskeletal disorders.
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Children Living in Pain (CLIP) – is a non-for profit organization dedicated to creating awareness and helping all children living with any disease where pain is stopping them from living a normal life.
Learn MoreNG Tube Flush – Drainage from the gut into a bag. Hayley keeps pulling out her NG drain. If she pulls it out all the way she will have to have it put back in. NOT NICE! They have really taped it down to her face. Hayley still in “ICE” room on 4D and […]
View PostDog Therapy at Stollery Hospital Day-4
View PostDay-5 Hayley is a little more coherent today. I still doubt she’ll remember much. Leg compression bandages came off most of the day We had to ask to have the pain meds turned up again in the night. She still cannot get comfortable. Everywhere she turns HURTS and there are wires, cables… Nurses are still […]
View PostDay 5 – IV Bleed Out– Hayley’s TP/AIT They are putting in a PICC line as you can the many IV lines are popping and falling out. A PICC Should have been put in days ago given she is running 6 separate pumps. Reaction To IV IV Bleed Out
View PostDay 6 Catheter finally comes out! IV Infection
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My name is Jenny Devoe and I am Hayley’s mom. This is an open letter with the only goal being that someone will read it and offer some type of help for my little girl before its too late. At this point in time I am writing out of sheer desperation with the hope that Hayley’s case will spark a […]
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