This is Hayley my lovely little girl, my life and the apple of her sisters Lyndsay and Shayna's eye! HAYLEY is our hero!!! Hayley became deathly ill at the age of 6. After much confusion and disbelief by doctors, 100's of IV's, feed tubes, scopes, test, over 50 admissions to hospitals and so much more...Hayley was diagnosed with a RARE disease named Chronic Pancreatitis.
This is a SECOND cue card video out there on youtube. This is MY true life story hope you like it.
I am desperately hoping to get this message to the right person. My little girl Hayley from Cambridge, Ontario is dying and it would mean so much if you could just read this. I tried to keep it brief and to the point but I have so much to share that I don’t know where to stop and start.
This is Hayley my lovely little girl, my life and the apple of her sisters Lyndsay and Shayna's eye! HAYLEY is our hero!!! Hayley became deathly ill at the age of 6. After much confusion and disbelief by doctors, 100's of IV's, feed tubes, scopes, test, over 50 admissions to hospitals and so much more...Hayley was diagnosed with a RARE disease named Chronic Pancreatitis.
This is a SECOND cue card video out there on youtube. This is MY true life story hope you like it.
I am desperately hoping to get this message to the right person. My little girl Hayley from Cambridge, Ontario is dying and it would mean so much if you could just read this. I tried to keep it brief and to the point but I have so much to share that I don’t know where to stop and start.
Some people will continue to experience pain long after recovering from an initial injury, such as a back injury. Other chronic pain is caused by chronic diseases such as arthritis or cancer.
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Pain can affect anyone at any age — even children and teenagers can feel chronic pain caused by neurological or musculoskeletal disorders.
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Children Living in Pain (CLIP) – is a non-for profit organization dedicated to creating awareness and helping all children living with any disease where pain is stopping them from living a normal life.
Learn MoreStomach Drain-NG Tube Test Here’s the deal- If they are able to continuously pump 4 of those tubes of fluid from her stomach then the NG tube must stay in. 🙁 Sleeping is bad she but is really drugged and likely won’t remember a lot (I Hope). Hayley is a little more coherent today which […]
View PostDay -09 – So hard to watch my little girl in this pain and suffering. Hayley finally slept a bit better Continually holding a pillow on her stomach for the sharp pain She has finally moves from ICU to a private room. It’s so quiet that we almost can’t sleep. There is a big space for mom […]
View PostDay 10 – Video Hayley woke exhausted and in pain again. It was a tough night. Up & Down She walked despite the fatigue. When she was walking I noticed a great improvement in her step and her over-all mobility. She said her pain was about a 7. The acute pain team (Dr. Carney) team […]
View PostDay 10 – Hayley talks pain! Hayley on Blower -Video
View PostDay 11- Hayley Devoe – Building Her Lungs Post TP/IAT Hayley woke up in pain today today. She had Gravol last night for nausea. We tried to walk however the pain is pretty intense. Dr. David (part of Dr. Shapiro’s team) came in and said the pain is still healing pain. They are carefully monitoring […]
View PostDay – 11 – Stomach Drain Finally Comes Out Hayley woke up in brighter spirits today. She felt much peppier between 6:30am and 8:30am. We did our usual walk but she was in noticeable pain. The nurse came in at 7am and asked if she’d like the NG tube out. She said YET AGAIN if […]
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