This is Hayley my lovely little girl, my life and the apple of her sisters Lyndsay and Shayna's eye! HAYLEY is our hero!!! Hayley became deathly ill at the age of 6. After much confusion and disbelief by doctors, 100's of IV's, feed tubes, scopes, test, over 50 admissions to hospitals and so much more...Hayley was diagnosed with a RARE disease named Chronic Pancreatitis.
This is a SECOND cue card video out there on youtube. This is MY true life story hope you like it.
I am desperately hoping to get this message to the right person. My little girl Hayley from Cambridge, Ontario is dying and it would mean so much if you could just read this. I tried to keep it brief and to the point but I have so much to share that I don’t know where to stop and start.
This is Hayley my lovely little girl, my life and the apple of her sisters Lyndsay and Shayna's eye! HAYLEY is our hero!!! Hayley became deathly ill at the age of 6. After much confusion and disbelief by doctors, 100's of IV's, feed tubes, scopes, test, over 50 admissions to hospitals and so much more...Hayley was diagnosed with a RARE disease named Chronic Pancreatitis.
This is a SECOND cue card video out there on youtube. This is MY true life story hope you like it.
I am desperately hoping to get this message to the right person. My little girl Hayley from Cambridge, Ontario is dying and it would mean so much if you could just read this. I tried to keep it brief and to the point but I have so much to share that I don’t know where to stop and start.
Some people will continue to experience pain long after recovering from an initial injury, such as a back injury. Other chronic pain is caused by chronic diseases such as arthritis or cancer.
Learn More
Pain can affect anyone at any age — even children and teenagers can feel chronic pain caused by neurological or musculoskeletal disorders.
Learn More
Children Living in Pain (CLIP) – is a non-for profit organization dedicated to creating awareness and helping all children living with any disease where pain is stopping them from living a normal life.
Learn More
My name is Jenny Devoe and I am Hayley’s mom. This is an open letter with the only goal being that someone will read it and offer some type of help for my little girl before its too late. At this point in time I am writing out of sheer desperation with the hope that Hayley’s case will spark a […]
View Post
What is Acute & Chronic Pancreatitis – Overview Acute and Chronic Pancreatitis usually begin with pain in the upper abdomen and can last anywhere from a few minutes of intense pain to several days of pain that is anywhere from mild to severe. The pain from Pancreatitis can radiate into the back or other areas […]
View Post
1. The grief we feel over the life we’ve lost may re-emerge now and then…indefinitely. One life event that can happen to anyone at any time is to be plagued with a chronic illness. There is indeed a grieving process that goes with any life-long illness. In many ways it is no different than facing other major life losses, such […]
View Post
Hayley is in a great deal of pain each day we are doing the best we can. It is very hard for her to have any type of normal or fun life. No doctor has an answer it’s quite sad and pathetic that the “doctors” so far are in such a comfort zone with their worlds that they are […]
View PostDay-1 – Post-Op Hayley’s Total Pancreactomy & Auto Islet Transplant (TP/AIT) Surgery Here are some Videos from Hayley’s Pancreactomy & Auto Islet Transplant May 31, 2013. Performed by Dr. James Shapiro at Stollery Children’s Hospital in Edmonton Alberta. It was a 13 hour surgery (see photo gallery). Hayley handled it like she does everything else in her life…with CLASS & […]
View PostDay-1 – Post-Op – TP/AIT Hayley’s Total Pancreactomy & Auto Islet Transplant (TP/AIT) 13 Hours in Surgery 47 Days in Stollery Children’s Hospital in Edmonton Alberta http://www.albertahealthservices.ca/facilities.asp?pid=facility&rid=1024457 Hayley Sitting Up Already Gentle Nod! For Mom Hayley was up most of the night in shock and pain. She is a little more coherent today but not much. I slept […]
View Post