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Pancreatectomy with Auto-Islet Transplant

Day-5 New PICC Line Replaces 6 IV’s

Posted on December 25, 2013 by admin in Hayley's Journey, Hayley’s TP/AIT - TP/AIT, Pancreatectomy with Auto-Islet Transplant No Comments

Day-5 Hayley is a little more coherent today.  I still doubt she’ll remember much. Leg compression bandages came off most of the day We had to ask to have the pain meds turned up again in the night. She still cannot get comfortable.  Everywhere she turns HURTS and there are wires, cables… Nurses are still […]

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Day-11 Stomach Drain Finally Comes Out

Posted on December 10, 2013 by admin in Hayley's Journey, Hayley’s TP/AIT - TP/AIT, Pancreatectomy with Auto-Islet Transplant No Comments

Day – 11  – Stomach Drain Finally Comes Out Hayley woke up in brighter spirits today. She felt much peppier between 6:30am and 8:30am. We did our usual walk but she was in noticeable pain. The nurse came in at 7am and asked if she’d like the NG tube out. She said YET AGAIN if […]

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Day-11- NG Tube Finally Removed – So Brave See Video

Posted on December 1, 2013 by admin in Hayley's Journey, Hayley’s TP/AIT - TP/AIT, Pancreatectomy with Auto-Islet Transplant, TPAIT No Comments

Day-11- NG Tube Finally Removed – So Brave See Video   Hayley woke up in brighter spirits today She felt much peppier between 6:30am and 8:30am. We did our usual walk but she was in noticeable pain. The nurse came in at 7am and asked if she’d like the NG tube out. She said YET […]

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Quality of Life Improves for Pediatric Patients After Total Pancreatectomy and Islet Autotransplant for Chronic Pancreatitis

Posted on February 22, 2013 by Jenny in Facts, Pancreatectomy with Auto-Islet Transplant, Research No Comments

BACKGROUND & AIMS                (See Link…)         Total pancreatectomy and islet autotransplant (TP/IAT) have been used to treat patients with painful chronic pancreatitis. Initial studies indicated that most patients experienced significant pain relief, but there were few validated measures of quality of life. We investigated whether health-related quality of life improved among pediatric patients undergoing TP/IAT. METHODS […]

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Recent Posts

  • Day-1 Hayley’s Total Pancreactomy & IV-Hell *Video’s*

    December 27, 2013
  • Day-2 Hayley Already Gets Out of Bed! (Video)

    December 26, 2013
  • Day-3 Hayley’s Up & Walking – First Steps*Video*

    December 26, 2013
  • Day-3 Hayley Talking – Graphic & Painful – What a Trooper *See Video*

    December 26, 2013
  • Day-4 – Cannot Find Vein in Feet & PICC Line Insertion (Video’s)

    December 25, 2013

    Room Make-Over @ Sickkids

    Room Make-Over @ Sickkids Hospital Toronto were Hayley spends a great deal of time. This Video is now part of the SickKids Video Library for distractions to assist other children in making their hospital stay a little brighter. She is always happy to help others.

    Hayley Devoe – CBC Radio Interview – Jun 18, 2013

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    This is a radio interview done with CBC Radio Edmonton from the Alberta Stollery Children's Hospital May 31st, 2013. The interview was done one month after her 13 hour (TP/IAT) Total Pancreactomy & Auto Islet Transplant. By this time Hayley should have had a lot less pain than she was experiencing but we were remaining optimistic. Hayley had opportunity to do both radio and TV interviews to talk about being the 2nd child in Canada to undergo this type of rare surgery and also bring raise awareness to the wrath of Chronic Pancreatitis and the TP/IAT procedure. Hayley chose not to do any further interviews to support the surgery because she already knew in her heart that the surgery was NOT doing what it was supposed to. The surgery was done with almost no pre-testing. Looking back I am now wondering what did the doctor base his positive comment on? His words were that he was 99.9% sure that the surgery was going to help Hayley's pain considerably and maybe even stop it altogether! Never did he say it could make it worse...

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