Hayley’s Journey

Day-11- NG Tube Finally Removed – So Brave See Video

Posted on December 1, 2013 by admin in Hayley's Journey, Hayley’s TP/AIT - TP/AIT, Pancreatectomy with Auto-Islet Transplant, TPAIT No Comments

Day-11- NG Tube Finally Removed – So Brave See Video Hayley woke up in brighter spirits today She felt much peppier between 6:30am and 8:30am. We did our usual walk but she was in noticeable pain. The nurse came in at 7am and asked if she’d like the NG tube out. She said YET […]

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Pancreatitis – When is a PICC Line is Necessary & Why? (Video)

Posted on March 10, 2013 by Jenny in London Hospital Jan 2013, Treatments Tried No Comments

PICC Line Insertion- Video… Hayley after the second PICC Line London Hospital – Loopy!! The PICC is a feed tube. A PICC line is essentially a narrow flexible catheter inserted through a vein of the upper arm above the elbow until its tip reaches a very large heart vessel called the superior vena cava (SVC). Receiving a […]

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Pancreatitis – Removing the PICC Line – Hayley Devoe (See Video)

Posted on March 10, 2013 by Jenny in Hayley's Journey, London Hospital Jan 2013, PICC Line No Comments

Pancreatitis – Removing the PICC Line When the peripherally inserted central catheter is no longer required it is removed similar to a peripheral catheter. It is also discontinued when the patient develops catheter complications such as infection, damage, or blocked. It is a painless procedure that takes only a few minutes and can easily be […]

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Video: Welcome to Chronic Pancreatitis-Hayley IV Start London Childrens Hospital Jan-2013

Posted on January 14, 2013 by Jenny in Hayley's Journey, London Hospital Jan 2013 No Comments

VIEW VIDEO… Most kids would crumble at the thought of an IV start. All hayley knows is that it is the start of better pain control and a TPN to come. At this point she is happy to get it! My brave little trooper! It’s pretty bad when you look forward to an IV. […]

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This is a radio interview done with CBC Radio Edmonton from the Alberta Stollery Children's Hospital May 31st, 2013. The interview was done one month after her 13 hour (TP/IAT) Total Pancreactomy & Auto Islet Transplant. By this time Hayley should have had a lot less pain than she was experiencing but we were remaining optimistic. Hayley had opportunity to do both radio and TV interviews to talk about being the 2nd child in Canada to undergo this type of rare surgery and also bring raise awareness to the wrath of Chronic Pancreatitis and the TP/IAT procedure. Hayley chose not to do any further interviews to support the surgery because she already knew in her heart that the surgery was NOT doing what it was supposed to. The surgery was done with almost no pre-testing. Looking back I am now wondering what did the doctor base his positive comment on? His words were that he was 99.9% sure that the surgery was going to help Hayley's pain considerably and maybe even stop it altogether! Never did he say it could make it worse...

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