Stories

Day-3 Hayley Talking – Graphic & Painful – What a Trooper See Video

Posted on December 26, 2013 by Jenny in Hayley's Journey, TPAIT No Comments

Day-3 Hayley was up most of the night. Hayley looks a little brighter today her nose and throat are really sore from the NG tube and from time to time she feels like she cannot breathe. Pain control is difficult. We had to call the pain service again in the night and they increased the […]

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Day-4 – Cannot Find Vein in Feet & PICC Line Insertion (Video’s)

Posted on December 25, 2013 by admin in Hayley's Journey, Hayley’s TP/AIT - TP/AIT, TPAIT No Comments

Day-4 Hayley has small veins that are near impossible to find. They are now going to make arrangements to put in the first PICC Line. This is hayleys 4th PICC line. Vein Search for IV…not very nice! Standing on her own after the PICC Line Insertion…soooo Proud!!!

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Day-4 – Hayley gets PICC Line (Video)

Posted on December 25, 2013 by admin in Hayley's Journey, TPAIT, Uncategorized No Comments

Hayley Finally Gets a PICC Line

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Day-4 Nose Drain Flush- (Video)

Posted on December 25, 2013 by admin in Hayley's Journey, Stories No Comments

NG Tube Flush – Drainage from the gut into a bag. Hayley keeps pulling out her NG drain. If she pulls it out all the way she will have to have it put back in. NOT NICE! They have really taped it down to her face. Hayley still in “ICE” room on 4D and […]

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This is a radio interview done with CBC Radio Edmonton from the Alberta Stollery Children's Hospital May 31st, 2013. The interview was done one month after her 13 hour (TP/IAT) Total Pancreactomy & Auto Islet Transplant. By this time Hayley should have had a lot less pain than she was experiencing but we were remaining optimistic. Hayley had opportunity to do both radio and TV interviews to talk about being the 2nd child in Canada to undergo this type of rare surgery and also bring raise awareness to the wrath of Chronic Pancreatitis and the TP/IAT procedure. Hayley chose not to do any further interviews to support the surgery because she already knew in her heart that the surgery was NOT doing what it was supposed to. The surgery was done with almost no pre-testing. Looking back I am now wondering what did the doctor base his positive comment on? His words were that he was 99.9% sure that the surgery was going to help Hayley's pain considerably and maybe even stop it altogether! Never did he say it could make it worse...

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