Surgery Day 🙁 Hayley’s Total Pancreactomy & Auto Islet Transplant (TP/AIT) Surgery This was the hardest decision we ever had to make. Watching your child suffer in ANY manner is just not normal. This is one of the biggest surgeries out there and Hayley handled it like she had done it 100 times before. I could […]
View PostDay-2 Hayley Already Gets Out of Bed! (Video)
Day 2 Hayley was up most of the night. She is a little more coherent today but not much. She is pretty helpless and needs to be assisted in rolling from side to side. A lot of PAIN!!! Through it all they say she will be up out of bed within a few days. She wanted […]
View PostDay-3 Hayley’s Up & Walking – First Steps*Video*
Day-3 Hayley First Steps after 13 hour TP/AIT The first step was to get her up and in her chair on Day 2 but no time is wasted in the ICU Unit because on Day 3 Hayley walked. Once we got her up she wanted to go…go…go! So Proud!!
View PostDay-3 Hayley Talking – Graphic & Painful – What a Trooper *See Video*
Day-3 Hayley was up most of the night. Hayley looks a little brighter today her nose and throat are really sore from the NG tube and from time to time she feels like she cannot breathe. Pain control is difficult. We had to call the pain service again in the night and they increased the […]
View PostDay-4 – Cannot Find Vein in Feet & PICC Line Insertion (Video’s)
Day-4 Hayley has small veins that are near impossible to find. They are now going to make arrangements to put in the first PICC Line. This is hayleys 4th PICC line. Vein Search for IV…not very nice! Standing on her own after the PICC Line Insertion…soooo Proud!!!
View PostDay-4 – Hayley gets PICC Line (Video)
Hayley Finally Gets a PICC Line
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