This is Hayley my lovely little girl, my life and the apple of her sisters Lyndsay and Shayna's eye! HAYLEY is our hero!!! Hayley became deathly ill at the age of 6. After much confusion and disbelief by doctors, 100's of IV's, feed tubes, scopes, test, over 50 admissions to hospitals and so much more...Hayley was diagnosed with a RARE disease named Chronic Pancreatitis.
This is a SECOND cue card video out there on youtube. This is MY true life story hope you like it.
I am desperately hoping to get this message to the right person. My little girl Hayley from Cambridge, Ontario is dying and it would mean so much if you could just read this. I tried to keep it brief and to the point but I have so much to share that I don’t know where to stop and start.
This is Hayley my lovely little girl, my life and the apple of her sisters Lyndsay and Shayna's eye! HAYLEY is our hero!!! Hayley became deathly ill at the age of 6. After much confusion and disbelief by doctors, 100's of IV's, feed tubes, scopes, test, over 50 admissions to hospitals and so much more...Hayley was diagnosed with a RARE disease named Chronic Pancreatitis.
This is a SECOND cue card video out there on youtube. This is MY true life story hope you like it.
I am desperately hoping to get this message to the right person. My little girl Hayley from Cambridge, Ontario is dying and it would mean so much if you could just read this. I tried to keep it brief and to the point but I have so much to share that I don’t know where to stop and start.
Some people will continue to experience pain long after recovering from an initial injury, such as a back injury. Other chronic pain is caused by chronic diseases such as arthritis or cancer.
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Pain can affect anyone at any age — even children and teenagers can feel chronic pain caused by neurological or musculoskeletal disorders.
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Children Living in Pain (CLIP) – is a non-for profit organization dedicated to creating awareness and helping all children living with any disease where pain is stopping them from living a normal life.
Learn MoreDay-11- NG Tube Finally Removed – So Brave See Video Hayley woke up in brighter spirits today She felt much peppier between 6:30am and 8:30am. We did our usual walk but she was in noticeable pain. The nurse came in at 7am and asked if she’d like the NG tube out. She said YET […]
View PostHayley Devoe – PICC Line Infected
View PostPICC Line Insertion- Video… Hayley after the second PICC Line London Hospital – Loopy!! The PICC is a feed tube. A PICC line is essentially a narrow flexible catheter inserted through a vein of the upper arm above the elbow until its tip reaches a very large heart vessel called the superior vena cava (SVC). Receiving a […]
View PostPancreatitis – Removing the PICC Line When the peripherally inserted central catheter is no longer required it is removed similar to a peripheral catheter. It is also discontinued when the patient develops catheter complications such as infection, damage, or blocked. It is a painless procedure that takes only a few minutes and can easily be […]
View PostBACKGROUND & AIMS (See Link…) Total pancreatectomy and islet autotransplant (TP/IAT) have been used to treat patients with painful chronic pancreatitis. Initial studies indicated that most patients experienced significant pain relief, but there were few validated measures of quality of life. We investigated whether health-related quality of life improved among pediatric patients undergoing TP/IAT. METHODS […]
View PostVIEW VIDEO… Most kids would crumble at the thought of an IV start. All hayley knows is that it is the start of better pain control and a TPN to come. At this point she is happy to get it! My brave little trooper! It’s pretty bad when you look forward to an IV. […]
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