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  • Hayley's Story

    This is Hayley my lovely little girl, my life and the apple of her sisters Lyndsay and Shayna's eye! HAYLEY is our hero!!! Hayley became deathly ill at the age of 6. After much confusion and disbelief by doctors, 100's of IV's, feed tubes, scopes, test, over 50 admissions to hospitals and so much more...Hayley was diagnosed with a RARE disease named Chronic Pancreatitis.

  • Pancreatitis - My Journey PT 2

    This is a SECOND cue card video out there on youtube. This is MY true life story hope you like it.

  • A Mother's Cry For Help

    I am desperately hoping to get this message to the right person. My little girl Hayley from Cambridge, Ontario is dying and it would mean so much if you could just read this. I tried to keep it brief and to the point but I have so much to share that I don’t know where to stop and start.

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    motherdaughter
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  • Hayley's Story

    This is Hayley my lovely little girl, my life and the apple of her sisters Lyndsay and Shayna's eye! HAYLEY is our hero!!! Hayley became deathly ill at the age of 6. After much confusion and disbelief by doctors, 100's of IV's, feed tubes, scopes, test, over 50 admissions to hospitals and so much more...Hayley was diagnosed with a RARE disease named Chronic Pancreatitis.

  • Pancreatitis - My Journey PT 2

    This is a SECOND cue card video out there on youtube. This is MY true life story hope you like it.

  • A Mother's Cry For Help

    motherdaughter

    I am desperately hoping to get this message to the right person. My little girl Hayley from Cambridge, Ontario is dying and it would mean so much if you could just read this. I tried to keep it brief and to the point but I have so much to share that I don’t know where to stop and start.

    Read More

  • Hayley_slider
  • broken_pan_slider
Share your story!CLIP is dedicated to creating awareness and helping all children living in pain. Send us your stories!

Causes of Chronic Pain

Some people will continue to experience pain long after recovering from an initial injury, such as a back injury. Other chronic pain is caused by chronic diseases such as arthritis or cancer.

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Chronic Pain In Children

Pain can affect anyone at any age — even children and teenagers can feel chronic pain caused by neurological or musculoskeletal disorders.

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About CLIP

Children Living in Pain (CLIP) – is a non-for profit organization dedicated to creating awareness and helping all children living with any disease where pain is stopping them from living a normal life.

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Pancreas Transplant Program – “Edmonton Protocol”

Posted on December 3, 2012 by Jenny in Facts, Pancreatectomy with Auto-Islet Transplant, Research No Comments

James Shapiro, M.D., Ph.D., FRCSC                       (See Link….) Born in Leeds, England, Dr James Shapiro obtained his Medical Degree at the University of Newcastle-upon-Tyne and trained in Surgery at the University of Bristol. In 1993, He came to the University of Alberta in Canada to train in liver transplantation and hepatobiliary surgery, continuing research studies in […]

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Pediatric Pancreatectomy and Islet Auto-Transplant Program

Posted on December 3, 2012 by Jenny in Facts, Pancreatectomy with Auto-Islet Transplant, Research No Comments

Pancreatectomy and Islet Auto-Transplant Program      (See Link…) How TP-IAT works The surgeon removes the pancreas and specially trained technicians separate out the islets. Then the surgeon injects the islets into the patient’s liver to produce insulin to manage blood sugar levels. If necessary, the patient can take supplemental insulin injections. Because the islets are the […]

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Pancreatitis-Attacks – Amylase Levels in the Blood – (See Video)

Posted on December 1, 2012 by Jenny in Facts, Uncategorized, What you don’t know No Comments

READ MORE…. Amylase breaks down the starch and carbohydrate present in the food into simple forms that are readily usable by the body. The normal amylase levels in the blood is 25 to 160 U/L (units per liter). A condition of very low or high levels is associated with various health problems. Read more at […]

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Chronic Pancreatitis Therapies – Possible Help With your Pain – ( see Link & Video)

Posted on November 27, 2012 by Jenny in Hayley's Journey, Treatments Tried No Comments

View Link…. Celiac Nerve Block Patients with advanced stages of chronic pancreatitis may fail to have adequate control of pain with oral drug therapy. In these patients, more aggressive intervention is required. In cases of intractable pain, injection of a local anesthetic around the nerve temporarily inhibits nerve fibers from transmitting pain messages. Celiac plexus […]

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Chronic Pancreatitis – Pain Can Lead to DEATH! – (See Link)

Posted on November 27, 2012 by Jenny in Facts No Comments

Can you Control Pancreatic Pain?       VIEW LINK This is a very important aspect of the treatment of chronic pancreatitis. Pancreatic pain varies in severity from mild (controllable with simple analgesics such as paracetamol (eg Panadol)) to severe (requiring morphine-like drugs for control). Severe pancreatic pain can be constant, unremitting and lead to depression and even […]

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Home Instruction : Ontario Regulation 298 Operation of Schools Section 11(11) Duties of Principals:

Posted on November 26, 2012 by Jenny in Education, Resources No Comments

SUBJECT: HOME/HOSPITAL INSTRUCTION Legal References: Ontario Regulation 298 Operation of Schools Section 11(11) Duties of Principals: Home Instruction Related References: Administrative Procedure 204 Program Planning; AP 401 Criminal Background Checks Form 250A Recommendation for Home or Hospital Instruction; Form 250B Home or Hospital Instruction Payment for Teacher SUBJECT: HOME/HOSPITAL INSTRUCTION Legal References: Ontario Regulation 298 […]

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Recent Posts

  • Day-1 Hayley’s Total Pancreactomy & IV-Hell *Video’s*

    December 27, 2013
  • Day-2 Hayley Already Gets Out of Bed! (Video)

    December 26, 2013
  • Day-3 Hayley’s Up & Walking – First Steps*Video*

    December 26, 2013
  • Day-3 Hayley Talking – Graphic & Painful – What a Trooper *See Video*

    December 26, 2013
  • Day-4 – Cannot Find Vein in Feet & PICC Line Insertion (Video’s)

    December 25, 2013
  • Day-4 – Hayley gets PICC Line (Video)

    December 25, 2013

    Room Make-Over @ Sickkids

    Room Make-Over @ Sickkids Hospital Toronto were Hayley spends a great deal of time. This Video is now part of the SickKids Video Library for distractions to assist other children in making their hospital stay a little brighter. She is always happy to help others.

    Hayley Devoe – CBC Radio Interview – Jun 18, 2013

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    This is a radio interview done with CBC Radio Edmonton from the Alberta Stollery Children's Hospital May 31st, 2013. The interview was done one month after her 13 hour (TP/IAT) Total Pancreactomy & Auto Islet Transplant. By this time Hayley should have had a lot less pain than she was experiencing but we were remaining optimistic. Hayley had opportunity to do both radio and TV interviews to talk about being the 2nd child in Canada to undergo this type of rare surgery and also bring raise awareness to the wrath of Chronic Pancreatitis and the TP/IAT procedure. Hayley chose not to do any further interviews to support the surgery because she already knew in her heart that the surgery was NOT doing what it was supposed to. The surgery was done with almost no pre-testing. Looking back I am now wondering what did the doctor base his positive comment on? His words were that he was 99.9% sure that the surgery was going to help Hayley's pain considerably and maybe even stop it altogether! Never did he say it could make it worse...

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