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  • Hayley's Story

    This is Hayley my lovely little girl, my life and the apple of her sisters Lyndsay and Shayna's eye! HAYLEY is our hero!!! Hayley became deathly ill at the age of 6. After much confusion and disbelief by doctors, 100's of IV's, feed tubes, scopes, test, over 50 admissions to hospitals and so much more...Hayley was diagnosed with a RARE disease named Chronic Pancreatitis.

  • Pancreatitis - My Journey PT 2

    This is a SECOND cue card video out there on youtube. This is MY true life story hope you like it.

  • A Mother's Cry For Help

    I am desperately hoping to get this message to the right person. My little girl Hayley from Cambridge, Ontario is dying and it would mean so much if you could just read this. I tried to keep it brief and to the point but I have so much to share that I don’t know where to stop and start.

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  • Hayley's Story

    This is Hayley my lovely little girl, my life and the apple of her sisters Lyndsay and Shayna's eye! HAYLEY is our hero!!! Hayley became deathly ill at the age of 6. After much confusion and disbelief by doctors, 100's of IV's, feed tubes, scopes, test, over 50 admissions to hospitals and so much more...Hayley was diagnosed with a RARE disease named Chronic Pancreatitis.

  • Pancreatitis - My Journey PT 2

    This is a SECOND cue card video out there on youtube. This is MY true life story hope you like it.

  • A Mother's Cry For Help

    motherdaughter

    I am desperately hoping to get this message to the right person. My little girl Hayley from Cambridge, Ontario is dying and it would mean so much if you could just read this. I tried to keep it brief and to the point but I have so much to share that I don’t know where to stop and start.

    Read More

  • Hayley_slider
  • broken_pan_slider
Share your story!CLIP is dedicated to creating awareness and helping all children living in pain. Send us your stories!

Causes of Chronic Pain

Some people will continue to experience pain long after recovering from an initial injury, such as a back injury. Other chronic pain is caused by chronic diseases such as arthritis or cancer.

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Chronic Pain In Children

Pain can affect anyone at any age — even children and teenagers can feel chronic pain caused by neurological or musculoskeletal disorders.

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About CLIP

Children Living in Pain (CLIP) – is a non-for profit organization dedicated to creating awareness and helping all children living with any disease where pain is stopping them from living a normal life.

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Every Child Should Have The Right to an “Equal” Education – What’s Available to Chronically Sick Children?

Posted on November 21, 2012 by Jenny in Education, Road Blocks No Comments

Every Child Should Have the Right to an “Equal” Education – What’s Available to a Disabled Child…. Is it enough? Home Instruction – Who knew? Once you finally are lucky enough to stumble on it you quickly realize 3 hours a week of “Home Instruction” is nowhere near enough learning time for any child who […]

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Chronic Pain a Growing Problem

Posted on November 12, 2012 by Jenny in Facts No Comments

Many patients who need opioids to help control pain can’t find a family doctor willing to treat them, OTTAWA — Tens of thousands of Canadians are living with unrelenting pain that can be isolating, demoralizing and deadly, a national summit on pain heard Tuesday. Yet while access to pain relief is a fundamental human right, […]

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Gov’t – Canada Disability Savings Grant

Posted on November 5, 2012 by Jenny in Government Programs No Comments

Helping you save The Canada Disability Savings Grant is a matching grant that the Government will deposit into your Registered Disability Savings Plan (RDSP) to help you save. The Government provides matching grants of up to 300%, depending on the amount contributed and the Beneficiary’s Family Income. The maximum grant is $3,500 each year, with […]

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Gov’t-Funds-Children With Disabilities – Can You Get Extra Child Tax Credit?

Posted on November 2, 2012 by Jenny in Government Programs No Comments

Extra Child Tax Credit        If your child has a disability, or if you’re responsible for a child with a disability, you may qualify for extra Child Tax Credit. READ MORE…….    

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Gov’t Funds-Child Disability Benefit (CDB) – What You May Not Know

Posted on November 2, 2012 by Jenny in Government Programs No Comments

Child Disability Benefit (CDB) The Child Disability Benefit (CDB) is a tax-free benefit for families who care for a child under age 18 with a severe and prolonged impairment in mental or physical functions. Application Information If applicant is eligible for the Canada Child Tax  Benefit (CCTB) but has not filed form T2201 – Disability […]

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Video (Click Here) – Hayley after the PICC Line Insertion

Posted on October 13, 2012 by Jenny in Treatments Tried No Comments

Hayley’s PICC Line – After the Proceedure Hayley was treaumatized by the whole experience given she was awake and mom could not be present.  So much for a young mind to absorbe! She is just sooooo sweet!    

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Recent Posts

  • Day-1 Hayley’s Total Pancreactomy & IV-Hell *Video’s*

    December 27, 2013
  • Day-2 Hayley Already Gets Out of Bed! (Video)

    December 26, 2013
  • Day-3 Hayley’s Up & Walking – First Steps*Video*

    December 26, 2013
  • Day-3 Hayley Talking – Graphic & Painful – What a Trooper *See Video*

    December 26, 2013
  • Day-4 – Cannot Find Vein in Feet & PICC Line Insertion (Video’s)

    December 25, 2013
  • Day-4 – Hayley gets PICC Line (Video)

    December 25, 2013

    Room Make-Over @ Sickkids

    Room Make-Over @ Sickkids Hospital Toronto were Hayley spends a great deal of time. This Video is now part of the SickKids Video Library for distractions to assist other children in making their hospital stay a little brighter. She is always happy to help others.

    Hayley Devoe – CBC Radio Interview – Jun 18, 2013

    listen

    This is a radio interview done with CBC Radio Edmonton from the Alberta Stollery Children's Hospital May 31st, 2013. The interview was done one month after her 13 hour (TP/IAT) Total Pancreactomy & Auto Islet Transplant. By this time Hayley should have had a lot less pain than she was experiencing but we were remaining optimistic. Hayley had opportunity to do both radio and TV interviews to talk about being the 2nd child in Canada to undergo this type of rare surgery and also bring raise awareness to the wrath of Chronic Pancreatitis and the TP/IAT procedure. Hayley chose not to do any further interviews to support the surgery because she already knew in her heart that the surgery was NOT doing what it was supposed to. The surgery was done with almost no pre-testing. Looking back I am now wondering what did the doctor base his positive comment on? His words were that he was 99.9% sure that the surgery was going to help Hayley's pain considerably and maybe even stop it altogether! Never did he say it could make it worse...

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