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  • Hayley's Story

    This is Hayley my lovely little girl, my life and the apple of her sisters Lyndsay and Shayna's eye! HAYLEY is our hero!!! Hayley became deathly ill at the age of 6. After much confusion and disbelief by doctors, 100's of IV's, feed tubes, scopes, test, over 50 admissions to hospitals and so much more...Hayley was diagnosed with a RARE disease named Chronic Pancreatitis.

  • Pancreatitis - My Journey PT 2

    This is a SECOND cue card video out there on youtube. This is MY true life story hope you like it.

  • A Mother's Cry For Help

    I am desperately hoping to get this message to the right person. My little girl Hayley from Cambridge, Ontario is dying and it would mean so much if you could just read this. I tried to keep it brief and to the point but I have so much to share that I don’t know where to stop and start.

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    motherdaughter
  • Hayley_slider
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  • Hayley's Story

    This is Hayley my lovely little girl, my life and the apple of her sisters Lyndsay and Shayna's eye! HAYLEY is our hero!!! Hayley became deathly ill at the age of 6. After much confusion and disbelief by doctors, 100's of IV's, feed tubes, scopes, test, over 50 admissions to hospitals and so much more...Hayley was diagnosed with a RARE disease named Chronic Pancreatitis.

  • Pancreatitis - My Journey PT 2

    This is a SECOND cue card video out there on youtube. This is MY true life story hope you like it.

  • A Mother's Cry For Help

    motherdaughter

    I am desperately hoping to get this message to the right person. My little girl Hayley from Cambridge, Ontario is dying and it would mean so much if you could just read this. I tried to keep it brief and to the point but I have so much to share that I don’t know where to stop and start.

    Read More

  • Hayley_slider
  • broken_pan_slider
Share your story!CLIP is dedicated to creating awareness and helping all children living in pain. Send us your stories!

Causes of Chronic Pain

Some people will continue to experience pain long after recovering from an initial injury, such as a back injury. Other chronic pain is caused by chronic diseases such as arthritis or cancer.

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Chronic Pain In Children

Pain can affect anyone at any age — even children and teenagers can feel chronic pain caused by neurological or musculoskeletal disorders.

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About CLIP

Children Living in Pain (CLIP) – is a non-for profit organization dedicated to creating awareness and helping all children living with any disease where pain is stopping them from living a normal life.

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Easter 2012 at Sickkids Hospital

Posted on August 1, 2012 by Jenny in Hayley's Journey, Stories No Comments

Easter 2012 at Sickkids Hospital We spent her 2012 Easter at Sickkids Hospital on a feeding tube.  No turkey dinner or anything for Hayley or mom that day! Hayley had nothing to eat for Hayley for 2 weeks not even ice!  Just as it started to work and her pain started to level out they […]

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Celiac Plexus Block – #1 Video & Story Can Hayley’s Pancreatitis Pain be Managed using a (CPB)

Posted on July 17, 2012 by Jenny in Hayley's Journey, Treatments Tried No Comments

See Video of CPB…. After suffering for 6 years from the effects of her pancreatitis attacts and the severe pain now closing in on her dayily along with many other horrible symptoms like being out of school and having no quality of life I approached the “Sickkids Pain team” and asked about a Celiac Plexus […]

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Wanda’s Pancreatic Pain & Journey

Posted on August 9, 2011 by Jenny in Adults Stories, Stories No Comments

Hello new friends, My name is Wanda, i live in Calgary, Alberta, Canada, i am 48 years old.. I want to be clear i tell my story not to cause fear, but to promote understanding, friendship and knowledge.I have had severe asthma since i was born, and always took inhalers, ect. Worked out 2 hours […]

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Recent Posts

  • Day-1 Hayley’s Total Pancreactomy & IV-Hell *Video’s*

    December 27, 2013
  • Day-2 Hayley Already Gets Out of Bed! (Video)

    December 26, 2013
  • Day-3 Hayley’s Up & Walking – First Steps*Video*

    December 26, 2013
  • Day-3 Hayley Talking – Graphic & Painful – What a Trooper *See Video*

    December 26, 2013
  • Day-4 – Cannot Find Vein in Feet & PICC Line Insertion (Video’s)

    December 25, 2013
  • Day-4 – Hayley gets PICC Line (Video)

    December 25, 2013

    Room Make-Over @ Sickkids

    Room Make-Over @ Sickkids Hospital Toronto were Hayley spends a great deal of time. This Video is now part of the SickKids Video Library for distractions to assist other children in making their hospital stay a little brighter. She is always happy to help others.

    Hayley Devoe – CBC Radio Interview – Jun 18, 2013

    listen

    This is a radio interview done with CBC Radio Edmonton from the Alberta Stollery Children's Hospital May 31st, 2013. The interview was done one month after her 13 hour (TP/IAT) Total Pancreactomy & Auto Islet Transplant. By this time Hayley should have had a lot less pain than she was experiencing but we were remaining optimistic. Hayley had opportunity to do both radio and TV interviews to talk about being the 2nd child in Canada to undergo this type of rare surgery and also bring raise awareness to the wrath of Chronic Pancreatitis and the TP/IAT procedure. Hayley chose not to do any further interviews to support the surgery because she already knew in her heart that the surgery was NOT doing what it was supposed to. The surgery was done with almost no pre-testing. Looking back I am now wondering what did the doctor base his positive comment on? His words were that he was 99.9% sure that the surgery was going to help Hayley's pain considerably and maybe even stop it altogether! Never did he say it could make it worse...

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