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  • Hayley's Story

    This is Hayley my lovely little girl, my life and the apple of her sisters Lyndsay and Shayna's eye! HAYLEY is our hero!!! Hayley became deathly ill at the age of 6. After much confusion and disbelief by doctors, 100's of IV's, feed tubes, scopes, test, over 50 admissions to hospitals and so much more...Hayley was diagnosed with a RARE disease named Chronic Pancreatitis.

  • Pancreatitis - My Journey PT 2

    This is a SECOND cue card video out there on youtube. This is MY true life story hope you like it.

  • A Mother's Cry For Help

    I am desperately hoping to get this message to the right person. My little girl Hayley from Cambridge, Ontario is dying and it would mean so much if you could just read this. I tried to keep it brief and to the point but I have so much to share that I don’t know where to stop and start.

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  • Hayley's Story

    This is Hayley my lovely little girl, my life and the apple of her sisters Lyndsay and Shayna's eye! HAYLEY is our hero!!! Hayley became deathly ill at the age of 6. After much confusion and disbelief by doctors, 100's of IV's, feed tubes, scopes, test, over 50 admissions to hospitals and so much more...Hayley was diagnosed with a RARE disease named Chronic Pancreatitis.

  • Pancreatitis - My Journey PT 2

    This is a SECOND cue card video out there on youtube. This is MY true life story hope you like it.

  • A Mother's Cry For Help

    motherdaughter

    I am desperately hoping to get this message to the right person. My little girl Hayley from Cambridge, Ontario is dying and it would mean so much if you could just read this. I tried to keep it brief and to the point but I have so much to share that I don’t know where to stop and start.

    Read More

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  • broken_pan_slider
Share your story!CLIP is dedicated to creating awareness and helping all children living in pain. Send us your stories!

Causes of Chronic Pain

Some people will continue to experience pain long after recovering from an initial injury, such as a back injury. Other chronic pain is caused by chronic diseases such as arthritis or cancer.

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Chronic Pain In Children

Pain can affect anyone at any age — even children and teenagers can feel chronic pain caused by neurological or musculoskeletal disorders.

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About CLIP

Children Living in Pain (CLIP) – is a non-for profit organization dedicated to creating awareness and helping all children living with any disease where pain is stopping them from living a normal life.

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Day-1 Hayley’s Total Pancreactomy & IV-Hell *Video’s*

Posted on December 27, 2013 by Jenny in Hayley's Journey, TPAIT No Comments

Surgery Day 🙁 Hayley’s Total Pancreactomy & Auto Islet Transplant (TP/AIT) Surgery This was the hardest decision we ever had to make.  Watching your child suffer in ANY manner is just not normal.  This is one of the biggest surgeries out there and Hayley handled it like she had done it 100 times before.  I could […]

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Day-2 Hayley Already Gets Out of Bed! (Video)

Posted on December 26, 2013 by admin in Hayley's Journey, TPAIT No Comments

Day 2 Hayley was up most of the night.   She is a little more coherent today but not much. She is pretty helpless and needs to be assisted in rolling from side to side.  A lot of PAIN!!! Through it all they say she will be up out of bed within a few days.   She wanted […]

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Day-3 Hayley’s Up & Walking – First Steps*Video*

Posted on December 26, 2013 by admin in Hayley's Journey, TPAIT No Comments

Day-3 Hayley First Steps after 13 hour TP/AIT  The first step was to get her up and in her chair on Day 2 but no time is wasted in the ICU Unit because on Day 3 Hayley walked.  Once we got her up she wanted to go…go…go! So Proud!!    

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Day-3 Hayley Talking – Graphic & Painful – What a Trooper *See Video*

Posted on December 26, 2013 by Jenny in Hayley's Journey, TPAIT No Comments

Day-3 Hayley was up most of the night.   Hayley looks a little brighter today her nose and throat are really sore from the NG tube and from time to time she feels like she cannot breathe. Pain control is difficult.  We had to call the pain service again in the night and they increased the […]

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Day-4 – Cannot Find Vein in Feet & PICC Line Insertion (Video’s)

Posted on December 25, 2013 by admin in Hayley's Journey, Hayley’s TP/AIT - TP/AIT, TPAIT No Comments

Day-4 Hayley has small veins that are near impossible to find.  They are now going to make arrangements to put in the first PICC Line.  This is hayleys 4th PICC line. Vein Search for IV…not very nice! Standing on her own after the PICC Line Insertion…soooo Proud!!!    

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Day-4 – Hayley gets PICC Line (Video)

Posted on December 25, 2013 by admin in Hayley's Journey, TPAIT, Uncategorized No Comments

Hayley Finally Gets a PICC Line

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Recent Posts

  • Day-1 Hayley’s Total Pancreactomy & IV-Hell *Video’s*

    December 27, 2013
  • Day-2 Hayley Already Gets Out of Bed! (Video)

    December 26, 2013
  • Day-3 Hayley’s Up & Walking – First Steps*Video*

    December 26, 2013
  • Day-3 Hayley Talking – Graphic & Painful – What a Trooper *See Video*

    December 26, 2013
  • Day-4 – Cannot Find Vein in Feet & PICC Line Insertion (Video’s)

    December 25, 2013
  • Day-4 – Hayley gets PICC Line (Video)

    December 25, 2013

    Room Make-Over @ Sickkids

    Room Make-Over @ Sickkids Hospital Toronto were Hayley spends a great deal of time. This Video is now part of the SickKids Video Library for distractions to assist other children in making their hospital stay a little brighter. She is always happy to help others.

    Hayley Devoe – CBC Radio Interview – Jun 18, 2013

    listen

    This is a radio interview done with CBC Radio Edmonton from the Alberta Stollery Children's Hospital May 31st, 2013. The interview was done one month after her 13 hour (TP/IAT) Total Pancreactomy & Auto Islet Transplant. By this time Hayley should have had a lot less pain than she was experiencing but we were remaining optimistic. Hayley had opportunity to do both radio and TV interviews to talk about being the 2nd child in Canada to undergo this type of rare surgery and also bring raise awareness to the wrath of Chronic Pancreatitis and the TP/IAT procedure. Hayley chose not to do any further interviews to support the surgery because she already knew in her heart that the surgery was NOT doing what it was supposed to. The surgery was done with almost no pre-testing. Looking back I am now wondering what did the doctor base his positive comment on? His words were that he was 99.9% sure that the surgery was going to help Hayley's pain considerably and maybe even stop it altogether! Never did he say it could make it worse...

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